Thursday, January 23, 2014

Today is the Big Day (well the first big day anyway)


January 23, 2014, 3:50 AM

I managed to sleep five hours last night which is not too bad.  I expected to not sleep at all, but I went down no problem and even woke up once and was able to get back to sleep.  Woke up again at 3:00 and the stomach churn and heart palpitations started with a vengeance and so here I am.  I don’t have much to share really, but enough of you have messaged me about the surgery details that I wanted to put them in the blog and just give a general update on things.

The peaceful serenity I was experiencing during my waiting period had been officially replaced by panic starting Sunday when I came home from my birthday trip to Buellton.  So this past week I had almost constant and very physical anxiety about having my boobs chopped off.  Which is literally how I envision it in my head.  Like some satanic ritual in a cult, very violent and dirty and gross and dangerous and NEGATIVE.  In my mind I keep reliving one of the execution scenes from The Tudors, I think it’s when Anne Boleyn’s lady in waiting is making her way to the platform and she is just shaking all over and barely coherent and just sort of a shell of a person on the outside.  I remember crying so hard during that scene.  And that is how I feel on the inside.  Scared.  Terrified really. And like I am being led to the guillotine.   My rational mind tries to outweigh that by calling it “getting the cancer out”, “removing the cancer”, or whatever version of that phrase you want, but the fear is winning.  When I compound thoughts of the surgery with thoughts of chemotherapy, well it’s unbearable.  I am trying to stay present, so just get through today and then worry about everything else later.  That does not come naturally to me and this week in particular I am really struggling.  It’s also weird because I feel really good and healthy.  I ran this week and had an awesome workout with my trainer on Wednesday and have been living totally sugar and alcohol free (well, I did have a piece of birthday cake and alcohol free just means I gave up my one-two glasses of wine a week) and so I feel incredible.  But the path to ridding my body of cancer is basically going to make me weak and sick and I really hate that.  If only I could workout and/or veggie out the cancer instead of having to cut it out and poison it with chemo.  That would be so much better.  I guess that’s why it’s called a fight.  But still.  It sucks.

So I check in today at 5:15 AM and my surgery is scheduled for 7:30 which means I should be out by 12:30-1:30, which is a great schedule because it means Chris can still help the kids get ready for school and help our sister in law Adela and my mom with the kid stuff.  In the afternoon, hopefully he can also help with pick-up and dinner prep.  All the talk about a care log and plans, well, I have a couple versions of excel spreadsheets, the one my friend, the worksheet queen at work designed, and one I designed but I have not populated a single cell.  I look at it and it is totally overwhelming.  I don’t have a clue who is taking the girls to school next week or making their lunches.  I am sort of torn between thinking I should’ve taken more time off of work before the surgery to get organized, and being thankful I didn’t bc the panic could have been way worse.  I don’t know.  I had all these master plans for being organized while being debilitated – stock up on funny cards, thank yous and bday cards so I don’t miss anything while I can’t drive or shop.  Get the girls Valentines Day gifts in orders.  Make a bunch of frozen meals and whole wheat muffins for the girls.  Get new tires for the car.  CLEAN AND ORGANIZE my house.  How many of those do you think I did?  Um, none.  Well, to be fair, I did make two turkey pot pies with our leftover Christmas turkey but that was actually before I knew my surgery date, so that was just luck.  I also did stuff that I didn’t even know I needed to do until pretty recently. I found some cheap button-up shirts to wear while I can’t lift my arms and pull stuff over my head.   I ordered a meal service for the week after I get out of the hospital, after our family is gone.  I ordered scar cream.  And over the time since my diagnosis I have bought seriously like 8 books about breast cancer which I haven’t actually read because I have had no time and some of them just make me cry but which I hope to read at some point during my recovery.  Oh I also bought some stuff that is supposed to help you not lose your eyebrows and eyelashes during chemo.  So I managed all the very basic, selfish and vain activities, but I did not get as organized as I had hoped, especially about the kids.  And that is causing me additional anxiety. 

Being sick with kids is also just really weird.  I feel incredibly guilty for getting sick at all because of the impact it is having and is going to have on Tash and Baby K.  This week has been another difficult Natasha week.  She is obviously totally connected to my moods, and so when my anxiety spikes she becomes a holy terror.  And then I become more anxious and frustrated and impatient and we get into this negative spiral of one upping each other with our ability to be horrible monsters.  I need to try to get through this with more grace so my poor child doesn’t suffer the consequences of my fear and anxiety.  How I do that, I don’t know.  I also just yesterday was thinking about how much my kids like to rest and snuggle against my chest and it seriously pisses me off that they aren’t going to be able to do that for a long while, and even when they do, my chest is going to feel very different and not as soft or cozy.  Last night I rocked Karina to sleep and she was so content, and I thought fuck, this is the last time this will ever be like this.  So cancer is taking that away from me and I want to punch it in the face – hard – and maybe never stop.

On the flip side, having kids means I don’t really have a choice about how aggressively to fight this or how quickly to heal or how to try and have a positive attitude (or at least fake it when I can.)  Sitting in a ball in the corner of the room crying isn’t an option, even when I want to.  And when I explain to Tash what’s going on with me, it actually does make me feel better because I explain it in a simple way and with a tone of just going through the steps of getting it out of my body and moving on.  Which is how I hope this whole journey goes.  So the having kids thing – there are major stressors to that, but also some benefits.  I think having kids is going to help me be a better patient and survivor.  I hope so at least.

What else?  Well, I feel like I sound like a broken record, but I got probably 30 text messages yesterday and even more Facebook messages, as well as calls from many of you wishing me well today.  The fact that so many of you remembered the date of my surgery is astonishing, and then that you took a moment to send me some love…well, it’s really incredible.  It makes a difference to me every day knowing that all this love and support and positive energy is coming my way.  I tried to respond to each of you, but as I explained to some of you, the more I talk or even write about the actual process of surgery the more upset I get and so my responses were short and probably didn’t fully convey my gratefulness.  Please know that I am grateful beyond what words could even convey.  I feel much less alone…and that is a big deal.

I’ll end with a quick request for the husband.  Chris has been on baby duty for probably a month now – Karina stopped sleeping through the night a couple months back and it is exhausting, but Chris took on her overnight wakeups knowing that I wouldn’t be able to lift her after surgery anyway, and really, I have been so incredibly tired I think bc of the stress so he wanted to help with that.  Natasha has also been having major night terrors, so no one in our house is sleeping well, but Chris in particular is not getting much sleep and is probably not getting all the love and attention that I am.  So, for those of you who are close to Chris, if you haven’t already, can you send him some love and maybe plan some time to take him out of the house for short periods of time to get In N Out or run or hike or play basketball of whatever.  A couple of my friends who are breast cancer survivors say they thought that their husbands had the hardest role to play in the whole process because they had so much responsibility but no one really pays them much attention or checks in on how they are doing.  I know I haven’t.   I have been totally fixated on myself and the kids.  So he is probably going to kill me for putting this out there, but he probably could use some small sanity breaks, even for just phone calls with friends or whatever.

That’s it.  It’s time for me to brush my teeth and pack my hospital bag anyway (yes, last minute, I know.)  We will keep you all informed after surgery.

Thanks for reading.

Love, Sherri

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