December 20, 2013
This week has been really hard because of Natasha drama and
overwhelming amounts of medical care coordination.
I don’t know what is
going on with Tash, if she senses that
something is amiss, but she is insane and angry and whiny and the past couple
days have provided ample evidence of that.
She has started throwing things, and screaming, and even hit us a couple
of times, all new behaviors we haven’t seen before, and so the time we get to
spend with her has mostly been spent disciplining her, threatening to give
stuff to goodwill when she throws it, and just generally not enjoying being
with her.
While Karina is not anywhere near the extreme that Tasha is,
the sibling refereeing is really getting to me too. Wednesday, from the second we got home from
gymnastics at around 6:45 PM, both girls were just wailing for me, competing to
have me hold them, to touch me, and were grabbing at me around the house like
little leeches until I literally plugged my ears and yelled at them that I needed
to get water and that I was a person and had my owns needs too. So in essence I did what every parenting
guide advises you not to do, and had a tantrum as a result of their
tantrums. And then I ran away to the
grocery store for a few minutes of alone time and peace and quiet. But the whole time I was there, I was like
f*ck. How am I going to do this? Are my kids going to leave me alone if I’m
barfing in the toilet after chemo or are they still going to want to be
touching me and in the bathroom with me bc if they are I am going to lose my
mind…Then I feel guilty for not being all like, oh my precious babies, I want
to enjoy every second. Ugh. I might actually go clinically insane.
Yesterday (Thursday) was also super stressful because I got
like eight different calls from Kaiser about various appointments and referrals
and we had a problem with the plastics appointment where they thought they couldn’t
schedule me until the 13th which would mean I couldn’t even decide
treatment until after then and I literally told the woman on the phone WELL I
CAN’T RISK DYING BC I CAN’T GET IN TO SEE YOUR DOCTOR. And then I signed up at City of Hope to become
a patient there. All in a matter of like
3 minutes. I guess fear and lack of
control are strong motivators. Chris
ended up calling Kaiser plastics back and we were able to get an appointment on
Monday, but dealing with that with both kids at home and trying not to terrify
them while I am terrified and stressed out.
Well. Like I said before it has been a shitty few days this week.
I also got a call from the surgeon’s office yesterday and
have to go in for more ultra sounds on both boobs and so then I am like WHY?
DID YOU DETECT SOMETHING ON THE OTHER SIDE IN THE CLINIC REVIEW? She said no, that it is normal practice, but
I can’t help but fear the worst. And
really everything I say about this is said in ALL CAPS bc it all feels scary
and urgent and like a precursor to worse news. SO I TALK LIKE THIS NOW. Ugh! Ugh! Ugh!!
So today is my last day at work before Cisco shuts down for
two weeks, but for me it may be even longer.
That is also weird. I am not sure
if/when I’ll be back! I will also be
spending a good portion of what I thought was going to be jolly holiday
shutdown time with the girls at the plethora of appointments I have. And I know – eyes on the prize. I want to live and so all this short term
crap should be of no consequence. But it
is really disappointing and stressful. As I have mentioned and complained about
at length.
A few funny/good things have happened too and so I should
share those:
1.
I realized that I can turn anything into a
reason to shop when I found myself perusing and favoriting cancer shirts and
cancer caps on Etsy this past week. At
least there is some good stuff out there.
2.
I am also committing to myself that while I am
on disability if I am not a total wreck, I am going to go for regular manis and
pedis at that green salon in Manhattan Beach.
I have never been, I get manis and pedis like once a year, except now I am like why the eff not
since the rest of my body is going to be in shit shape and I won’t have hair. Something needs to look pretty!
3.
I may also buy some funky wigs and try out
different hair colors and styles – although I hear wigs are expensive and assume
insurance only covers one.
4.
I checked into my FSA and I can actually
increase my contribution until December 31st and so I am not so
worried about the financial implications of treatment.
5.
When I told a coworker about the diagnosis, she didn’t
even blink before saying “You’ve survived at Cisco for 6 years, you can survive
anything.” Cisco is a great place to
work, but also really demanding so I thought that was funny.
6.
My friend Adam bought one of those little cards
in support of cancer at a barber in Torrance (I may be getting those details
wrong) and listed “BlissBeatsCancer” for the display. I thought that was cool.
7.
My sister is encouraging me to take this as an opportunity
to get the perfect boob(s) and tummy tuck.
Who knows, maybe that will be possible and I will come out of this even
hotter than going in. (I’m joking when I
say hot…)
8.
I used my diagnosis to get an Amazon discount
this week. I really want a kindle, and I
had received a one-day $50 off coupon last week, but I just couldn’t make the purchasing
decision because I was all effed up in the head. When I decided definitively that I wanted
one, I contacted their customer service desk and explained that I had been
diagnosed with breast cancer which delayed my purchasing decision but that I
wanted a kindle to get me through chemotherapy, and so they gave me a $20
credit. It’s not the $50 I wanted, but
it’s something.
I think that is all the crazy randomness in my head right
now.
Thanks for listening.
Sherri
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